After seeing Dr. Hantel, we went to the chemo room where they informed me that for Carbo Platinum, the dosage is based off of your kidney function. So they had drawn labs on my kidney function which takes an hour to come back. So nothing can happen until then. The nurse came back around noon and told me she was stalking the Dr. and the pharmacy to see if she could get my chemo mixed before the pharmacy closed for lunch. Yes, for lunch! I get it everyone gets a lunch break, but I was on time today and didn't get mine! I was getting a little grumpy and the steroids I had with breakfast weren't helping. But my nurse was awesome and was able to get my stuff done before lunch! So next came IV bags of anti-nausea, Zanax and steroids and a benadryl pill. THEN another 45 minute wait for those drugs to run their course in my body. Then Taxol, which a small percentage of patients have an allergic reaction. This drug takes an hour and prayers worked once again and I did not have any reaction. The last kicker for the day, Carbo platinum is supposed to be a 20 minute drip so I think I am just about ready to chew my arm off, but I know the finish line is near. They tell me my trusty little kidneys are so good that I could handle more than the average person for Carbo platinum so my drip will be an hour for this drug! Good for you kidneys, stay strong, but I was so ready to get out of there. You all know the smell bothers me so bad that I can't snack or eat while I'm there so I just sat and worked and worked and worked! It kept my mind off of the hunger and the smell.
So the weeks I just have Taxol, we are looking at 2 hours, but the weeks of both drugs, it will be a 4 hour ho rah! I am going to have to find a way to sneak a snack in or lunch. Even the nurse was tempting me with the Southwest Salad that every raves about at the hospital on given Fridays, but I couldn't do it. The smell is so clean and it just makes me sick. The minute I pull into the parking lot my stomach turns and mouth waters. Then when I leave, it is instantly gone. If anyone can offer any tips, I will gladly take them.
So thank you for listening to my ordeal. I know it is a small problem in the big scheme of things, but it is really annoying to wait around for others especially when I get so anxious there. So again, 1 down 11 to go!
Whitney did a good job keeping me entertained with Pins from Pinterest and enjoyed her quiet day of just surfing the Internet and watching mindless TV so I don't think she minded too much. She is now at work at Starbucks and will then pick my parents up at the airport. They are in until Wednesday early morning. I am so excited to see them! Wendy stayed with Ryan today and made us dinner and did laundry! YAY! Justin survived his first 3 days of Kindergarten and has done great with the transition. He looks forward to returning on Monday. This morning he didn't quite understand why he wasn't going on Saturday and Sunday. I am sure that won't last long! We also signed him up for soccer again which starts the weekend after Labor day so he will have something else fun to look forward to.
Well, here is to hope and prayers that the ugly fatigue will not rear its head too much and we get more shrinkage out of this!! Every time I think I outsmart the fatigue, it always shows up! YUCK!! It is not fun, it is absolutely the most frustrating thing. Almost more so than feeling this stupid tumor. I am just not used to doing what I want when I want and HATE the idea of slowing down. When I do feel better, it is heavenly! So please pray for me! Also for my family as they have to step up more during my slow times and I know that is a lot on them. I also lose my patients more and they take it in stride and that stinks. After all they do, it probably stinks to not get my beautiful smile or smart, funny, witty comments back! So please pray for us all! This could be a roller coaster of a week, but maybe not!
I will touch base more after the weekend to let you all know how I'm doing!
Love to all and enjoy the weekend!